Research
Vision papers, ethical frameworks, research findings. Published openly — including what did not work.
Research that is not published is research that did not happen. Every paper, every finding, every framework produced by this initiative will be published openly — accessible to clinicians, researchers, patients, families, and the communities we serve.
That includes what did not work. Hiding failure is incompatible with trust. The publications below are in preparation, under review, or planned. Each will be added to this page the moment it is ready.
Publication 01
A vision paper articulating the philosophy, principles, and ethical foundations of the Palliative Care AI Research & Innovation Initiative. Argues that compassionate technology in serious illness must be designed alongside — never in place of — the human relationship at the heart of care.
Publication 02
A first-year findings report from our first clinical collaboration, examining what was learned, what surprised us, and what we would do differently. Co-authored with clinical partners and community representatives.
Publication 03
A proposed ethical framework for the development and deployment of compassionate technology in palliative care. Addresses consent, privacy, human oversight, bias, transparency, and the limits of what technology should ever attempt to replace.
Publication 04
A qualitative exploration of caregiver burnout indicators — the quiet, easily-missed signals that surface before the breaking point. Findings will be drawn from consented interviews and used to shape future capabilities.
Publication 05
A qualitative study of the time between diagnosis and care, told through the voices of patients, families, and caregivers. Published openly as both an academic paper and a public-facing narrative.
Publication 06
An honest reflection on what was tried, what failed, and what we learned. Published openly — because hiding failure is incompatible with trust.
